By: Natalie Smith
Told by: Breanna McDaniel and Ajah Eleby
Coping With SCID
I am Natalie Smith and I have Severe Combined Immunodefiency (SCID). I am here to tell you my story.
Life was going good, until June 12, 1984, everything started going downhill. I remember that day as if were yesterday. My doctor told me I had pneumonia, but it became much much worse.
I was diagnosed with Severe Combined Immunodefiency. I was told that I wouldn't have that much longer to live, due to the fact I didn't get the help I needed earlier. The doctors were very sure that I wouldn't make it. So they gave me 2-3 months to live. Within those months I started experiencing every sickness that occured, it was too much pressure for me to handle. I feel like I could drop dead at any moment now.
Describe here your tertiary education, degrees and any other course description you wish to include.
I grew into a deep depression not knowing when I would stop breathing at any given moment. It hurt to see all those things happening to me, but I was 12 back then, what exactly did I know? My parents tried hard to keep me alive. I attended every gene therapy, I had many, many surgeries, and I also stayed in a bubble, but I never knew why I didn't survive. I feel as if I gave up on life. June 12th 1996, was the exact date that I passed away. Today I would have been 19.
My parents talk about me a lot, they say I was a strong willingful young woman. They say that no matter what I went through, I never gave up. Which explains to me why I am Daddy's little hero, but now I am one of God's little Angel.